I used to blame my son for his behavior and get frustrated when he wouldn't focus. After a psychologist diagnosed him with a disability, I realized I needed to change how I parent.

By Amy L. Freeman
Courtesy of Amy Freeman

A psychologist placed two white sheets of paper on the table in front of me. One page held a complex geometric line drawing, its crisp angles obviously computer-rendered. The second sheet held a wobbly hand-drawn penciled facsimile of the first drawing, heavy on detail on the left side of the page and petering out by the middle.

My 11-year-old son's task was to copy what he saw. If I'd copied the drawing, I would have muttered something like, "Okay. Big square in the center, line down the middle, rectangle in the bottom right corner," as I drew. My son's approach confused me. Why start at one edge, rather than drawing a framework?

The psychologist said she'd put the drawings away and had him do an unrelated sequencing activity. A half-hour later, she gave him a pad and asked him to recreate the earlier drawing. She slid the result in front of me. His new drawing was barely recognizable as a copy of the earlier one.

"He didn't organize the information in the first image, so it wasn't accessible to him in a useable form," she said.

His diagnosis: attention deficit hyperactivity disorder, executive functioning challenges, and sensory-motor integration difficulties.

I shook my head. "He doesn't have learning disabilities. He started reading when he was 2. I have it on video."

"He's 2e—twice exceptional. He's both gifted and disabled. 2es are good at masking challenges,” she said.

"There must be some mistake." I leafed through the rest of his neuropsych test results, knowing there wasn't. I'd pushed to have him tested for a reason, after all.

My son is the youngest of my children and my husband and I split when he was 3. Raising him, I was tired and sad. But as with my older two, I read him Winnie-the-Pooh, took him outside to finger-paint, and sang him "Twinkle, Twinkle, Little Star" at bedtime.

Now and then, I saw a developmental hiccup. A preschool teacher told me he couldn't draw a diamond, which could mean small motor issues. He could snap tiny Legos together though, so I dismissed her comment as helicopter teacher-ing. When he started to write, he used his own system for forming letters, loopy and irregular. I assumed he'd figure it out. When I gave him a list of tasks (brush teeth, put on socks, bring down backpack), he'd do two out of three. I thought he wasn't listening.

Because my older kids developed typically, I blamed myself for my youngest's early struggles. Maybe he saw that I was distracted in my applause and thought I didn't value his artwork. Or I was jaded from raising his siblings and hadn't spent enough time playing with him. But as his kindergarten effort grades gave way to erratic achievement grades in his elementary years, I started to blame him.

"How many times do I have to tell you? Put your homework in your binder as soon as you finish," I would tell him. Or "You had two weeks to get that report done!" and "You need to focus."

I tried reward charts, pep talks, and stern lectures. I double-checked his assignments, reviewed completed homework and quizzed him for tests. I felt his frustration when his efforts fell short. He wanted to achieve and sporadically, he shone. But nothing helped for more than a week.

Then his math performance nose-dived. Sometimes he was careless. Other times, he didn't understand the question, and occasionally he added wrong because he hadn't lined up numbers in neat columns. His errors had no pattern, so no one knew how to help him.

The teacher, who had met with a learning specialist, moved him to a lower math class. When I told him her decision, he cried.

In the months since his 2e diagnosis, I've put supports in place. His math teacher adds "show your work here" spaces on his tests and his science teacher puts one question per page on his quizzes, rather than four. He's working with a "homework helper" and learning to backstop himself. All his teachers have been briefed in the futility of exhorting him to "try harder;" he needs to try "differently," not "more."

At home, I've seen him whack the side of his own head, as though trying to shake something loose, or knock it into place. I've caught myself staring at him, as though if I look hard enough, I'll understand how he thinks.

My earlier words still spool through my mind, although I've changed how I speak to him. When it's his turn to do the dishes and he leaves two spoons in the sink, I tell him to go finish up and don't ask why he didn't do the whole thing the first time. I give him one task at a time, not three. I don't say a word if his tying his sneakers makes us late.

I don't know how well all these changes will help him in the future, or whether my apologies make amends for the past. And as I look around my own life with fresh eyes, I can't help but wonder who else's limits I've misjudged.

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Comments (2)

Anonymous
October 3, 2019
Sounds very familiar! Thank you for sharing your experience. Hoping we can get a correct diagnosis for our formerly gifted-designated and now struggling middle-schooler. It's quite a process!
Anonymous
October 2, 2019
I am 60+ and my son is going to turn 19 this October. My daughter, 24, is a qualified psychologist and she diagnosed him as being autistic. She had him tested and I was told by the centre for children's mental health that he has Aspergers. He has never had any of these issues like having any difficulty in reading or writing. Whenever I used to make him write it used to turn out really neat and he could read as well as the other boy in his class! Infact, he memorised a long, long poem called Daffodils with proper expressions which he had to recite in school! I was transferred out of my hometown by my organisation for four years when he was nine and I didn't take my family with me as that would have disturbed studies of both my children who were in school then. I lost four years with my son. While the 'traits' defined as autism as a mental condition does exist in individuals but when it was told to me after I came back that my son has it, I was quite confused. I have not still been able to come to terms with this fact. Simply because all the characterstics and symptoms that were described were something that he had never spent much time doing or practicing so that he could develop an affinity with it. And when he was made to do it there were never any issues. His formative years, i.e., between 9 to 14 years went by without my guidance. He was diagnosed as dyslexia and dysgraphia among others. I had heard of these but I had never applied it to my son simply because he never had any difficulty with reading or writing when made to do it. I had always observed that he just didn't like doing it and when made to he used to do a wonderful job. I always thought that it was a wrong diagnosis and still do. More so as he has a quick sharp mind and picks up anything very fast on his own. He learnt to solve the Rubik's Cube when he was around 7, he became very proficient in Indian classical vocal music and earned a degree when he was just 11 years, taught himself the basics of the functioning of the brain and he wanted to be a neurosurgeon, learnt to play the piano with both hands all on his own, learnt to play classical pieces like Canon by Pachelbel, Sheep May Safely Graze by Bach, Greensleeves etc on the guitar and more. All on his own through the net and YouTube! His teacher used to call him a future Einstein... How can I accept that he is an Aspie or autistic? But now since that has been ingrained and has been drilled into his head which he "proudly" accepts, he thinks that I am not parenting him properly and since he is almost 19 years he has his ideas more or less fixed and refuses to believe me. His level of belief in me is not something that I can write home about anymore though there is no love deficit, there is certainly a trust deficit. I am at a total loss to understand what can I do to make him develop his self belief which is what I think he really lacks which leads him to belive that he is an Aspy. He has made a thorough study of the condition and the medicines required like melatonin etc and can argue with a qualified psychaitrist to his advantage. I cannot motivate him anymore and I have run of ideas now much to my despair. Please do tell me that I am wrong or advise me what to do?