By Holly Lebowitz Rossi
Updated: April 11, 2019

Avery Canahuati, the 5-month-old girl who captured the nation's heart with her family's embrace of life despite a devastating diagnosis, died Monday of complications from spinal muscular atrophy (SMA). The disease is the number one genetic killer of children under age 2 in the U.S., with 1 in 40 Americans carrying the gene that can lead to the disease.

The Canahauti family says they will help raise $365,000 to find a cure for SMA.

Image: Avery Canahauti, via http://averycan.blogspot.com/

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