Because babies with the rare birth defect are born without parts of the front brain and skull, they can only survive for a few hours after birth. Despite this, the parents decided to carry their baby to term and celebrate his life in the womb (#shanesbucketlist), which they chronicled on the Prayers for Shane Facebook page.
Today at 6:15 AM, after meeting his entire family and being baptized into the Catholic faith, baby Shane died peacefully in his Mother's arms ... we are so grateful for the time that we were blessed to hold and hug our son ... the support and prayers we have received from all of you have been amazing and we want to thank each of you with all our hearts ... Shane spent his entire life in the arms of people that loved him unconditionally and I don't think you could ask for a more beautiful life then that ... he is home now with the Lord and will forever be our little miracle.
In the months leading up to Shane's birth, the couple carried on #shanesbucketlist by visiting New York City, riding the Strasburg Railroad, and going pumpkin picking. They also celebrated Haley's birthday, had a surprise "shower of love" party at Shane's 35 weeks, and hosted a final pre-birth party with family at Shane's 39 weeks. As the couple wrote on the page, "Shane is so loved by so many already!"
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Image: Photo of baby Shane originally appeared on the Prayers for Shane Facebook page.