Duchenne Muscular Dystrophy: Pietro's Fight
One family continues to fight for their son who was diagnosed with Duchenne Muscular Dystrophy at 3 years old. Pietro's Fight is an organization raising awareness and funding for research about the progressive genetic disorder.
-On July 12, 2012, our son Pietro took a blood test that we knew the results could change our lives forever. Twenty-four hours later on July 13 at 10 a.m., a phone call came in and confirmed our worst nightmare. Pietro has Duchenne muscular dystrophy. At first, we didn't know how we were going to pick up the pieces and continue to live life. Pietro has always been a loving, happy boy and we knew we were going to do everything in our power so that that would never change. We began to research, looking for treatments and answers. After days and weeks of research, we knew that this generation of DMD patients was very different from the generations before them. Thanks to creative strong families that have children with DMD. There are therapies and drugs that are around the corner that can help Pietro and all these boys have a chance at a normal life. We knew we had to join them in this fight and do our part. Two months later, PietrosFight.org was born. -There goes the fighter. There goes the fighter. Here comes the fighter. That's what they'll say of me, say of me, say of me. This one's a fighter. -We needed the help of our family, friends, and our community to get the word out there. We called and they all answered beyond our expectation. The support we have received has been overwhelming. As a family, we speak to researchers on a weekly basis. The consensus in the DMD community is that the only thing standing in the way of the children with DMD leading a normal life is money. We are desperately working hard alongside dozens of organizations like Pietro's Fight to raise awareness and get the proper researchers the funding that is needed in time to save the lives of these DMD generation boys. It is a different generation. They know why and how DMD happens. -There goes the fighter. There goes the fighter. Here comes the fighter. That's what they'll say of me, say of me, say of me. -I believe with every fiber in my body with our efforts and your help, this generation of boys with Duchenne can be a part of the once thought of impossible, a normal life. I want to be able to look into his eyes and see a future of endless opportunities, not roadblock. As a team, as a family, we will fight and move forward hand-in-hand. We will make every moment count. Through our foundation, Pietro's Fight, we promise to make every dollar count. All donations that are made to Pietro's Fight are directed into the hands of researchers who have the best shot at developing a treatment or cure for Duchenne muscular dystrophy. Our goal is to cure DMD in time to save Pietro's life and thousands of boys just like him. Although Pietro has this devastating disease, he is fortunate to have the love and support of our family, friends, and our community. He is also fortunate because he can benefit from the first generation of therapy called exon skipping that is awaiting FDA approval. Although strives have been made over the last five years in the DMD community, we still have a long road ahead of us. We ask you, our dear friends and family, that you will continue to be passionate in helping us fight this disease and find the cure of the Duchenne muscular dystrophy. In Pietro's eyes, we see hope. We have hope that, together, we can fight Duchenne muscular dystropy. Together, we will knock this devastating disease out. This is our mission of love, our fight for cure. To learn more or donate, please visit www.PietrosFight.org.