Denise Brodey's The Elephant in the Playroom (Hudson Street Press) comes out this month. For this book, which explores raising a child with special needs, she interviewed hundreds of parents about their experiences dealing with issues ranging from autism to attention deficit disorder.
Q. What inspired you to gather all of these stories for the book?
A. In May 2003, when my son, Toby, was 4, he was diagnosed with sensory integration dysfunction and childhood depression. During the months leading up to the diagnosis, and after, I have never felt so alone. It was out of that desperate loneliness that I wrote this book. I wanted to know how other parents of not-so-normal kids made it through the day.
Q. What is sensory integration dysfunction, exactly, and what are the symptoms?
A. Toby is highly sensitive to light, sound, noise, and touch, and has problems learning or behaving appropriately when his senses are overwhelmed.
Q. How would this play out day to day?
A. When he was young, everything had to be planned -- he needed to know that he'd wear his non-itchy brown socks and jeans with the hole in the knee the next day, that we'd leave for school 10 minutes early so we'd get there while it was quiet and he could play with his favorite toy.
Q. But lots of kids like to know what's going to happen. What's different about Toby?
A. Here's an example: One morning the dog threw up on the jeans, so Toby couldn't wear them. And because of that upset, we were running late, so we didn't get to school early, and it was noisy, and someone else already had the toy. Some kids can shrug it off -- Toby had a 20-minute tantrum. In those days (Toby is now doing much better) he'd likely throw up or get hurt from banging his head. We tried to manage life to avoid these tantrums, but his need for control was taking a huge toll on our family.