Get Organized and Keep Good Records
As parents of children with autism embark on treatment and therapies for their child, one of the most important things they can do is to keep accurate and organized records. "Over the years, as we got bogged down with progress and regression, it was often hard to see and remember what my son had learned, what he had accomplished, how far he had come, and what he still needed to learn," Goring remembers. "So we'd go back and watch the videos we made of him from certain points in his life to remind ourselves of how much he had accomplished versus how he was now." With evaluations from doctors and schools, educational records, detailed data from behavioral, medical, and biomedical therapies, and doctor's notes and recommendations, the vast amount of records and paperwork can bury parents.
Some parents organize their child's records within binders, year by year. Others create files grouped by subject: medical, educational, therapy, etc. Many autism organizations now advise scanning all documents and saving them in online file-sharing sites to reduce paper trails. "Figuring out a good organizational method early on is key," Goring says. "You need to hold on to pretty much everything because you need to be able to look back on what you have done, how you have paid for treatment, and what has and hasn't worked."