Occasional Visitor
Posts: 1
Registered: ‎04-07-2014

Rare and Hopeful

Thank you to Parents for the wonderful articles on special needs!  Our son has a very rare genetic disorder that doesn't allow him to digest proteins and it's been pretty rough going.  He is now almost 4 years old and we are still struggling since there isn't a lot of data to help us, but I felt better reading from other parents about how strong they and their children are!  Annie

Regular Contributor
Posts: 245
Registered: ‎05-28-2013

Re: Rare and Hopeful

Hi Annie,


I am happy to hear that you have found some comfort throw other parents here. Life isn't always easy and when challenges are thrown in our path, it's nice to have other mom and dads who understand what we might be going through.


Best wishes to you and your family.


Community Manager
Posts: 1,599
Registered: ‎05-24-2013

Re: Rare and Hopeful

[ Edited ]

Hi Annie :smileyhappy: I'm so glad you have found comfort here.  My daughter also has a very rare syndrome and so much is still unknown about her future. I have also found great comfort in others who can relate.  ((hugs to you and your precious son!))

~ Christine ~
Mom to a sweet little girl and 2 busy boys
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