Posts Tagged ‘ health ’

Caroline’s Cart: Shopping Made Easier For Kids With Special Needs

Wednesday, February 19th, 2014

This is a post in the weekly Autism Hopes series by Lisa Quinones-Fontanez, a mom who blogs  over at AutismWonderland.

Before I was a mom and before my son, Norrin, was diagnosed with autism I used to side eye the mothers who had their ‘too big’ kids stuffed into the seat of a shopping cart. I thought the kids were lazy and assumed the moms had no control. Now I know better.

I remember what it was like shopping with Norrin when he was younger and first diagnosed with autism. If I were with my husband, it was easier. If I was by myself, I’d either hoist him up and squeeze him into the shopping cart seat (knowing he had exceeded the limit) or struggle while shopping, holding his hand and navigating crowded store aisles.

Even now, at eight years old, we hold Norrin’s hand or stay close by. And those few seconds if/when he runs away and out of sight and I’m yelling his name scanning the aisles, are agonizing. I wish he could still fit in a shopping cart seat so that  I can run in and out without me having a heartache or him a meltdown.

The moment I saw Caroline’s Cart in my Facebook feed, I knew how important it was for special needs families. The cart was specifically “created for special needs children. It provides parents and caregivers a viable option to transport a child through a store while grocery shopping, without simultaneously having to maneuver a wheelchair and a traditional grocery cart.

Some of the features of Caroline’s Cart includes:

  • The seat back has a five degree tilt for increased comfort for low muscle tone children
  • The seat faces the caregiver, so eye contact is easy to maintain, children with anxiety issues can watch the parent during the shopping trip, and children prone to seizures can be monitored
  • The platform below the seat provides a footrest for the child
  • An abductor in the seat helps keep the child upright
  • A harness helps to secure the child so parents have hands free to steer the cart and shop

While Norrin doesn’t require the use of a wheelchair, we could still benefit from Caroline’s Cart. Sometimes shopping can be overwhelming for kids with autism. Stores are sensory overload – people talking, kids crying, loud speakers crackling, shopping carts banging into displays. Caroline’s Cart would be especially helpful while at check out. It can be difficult to keep an eye on Norrin while I’m  trying to unload my purchases and pay.

I haven’t seen Caroline’s Cart in any of my local stores, but I’ll be looking. And I want you to look too. If you don’t see it and you need it, don’t be scared to make a call or send an email. Because it never hurts to just ask. It worked for this mom, it could work for you.

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Baby Care Basics: When a Baby Has a Birth Defect
Baby Care Basics: When a Baby Has a Birth Defect
Baby Care Basics: When a Baby Has a Birth Defect

image: screen shot Caroline’s Cart

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Little Signs Of Independence When Your Kid Has Autism

Wednesday, February 12th, 2014

This is a post in the weekly Autism Hopes series by Lisa Quinones-Fontanez, a mom who blogs  over at AutismWonderland.

These days, we’re letting him take the lead.

Five years ago when Norrin was diagnosed with autism and started Early Intervention, we had a team of therapists in and out of our apartment. We focused on teaching Norrin how to ask for help. “Help” was one of the first signs he learned and “I need help” was one of the first three word sentences he said.

The irony is that as soon as Norrin began saying “I need help” spontaneously and independently, I prompted him to do the thing that requested help with, himself. Even if he couldn’t do it, I wanted him to at least try before I stepped in to help.

Norrin is eight years old and he still needs my help with many things. The challenge is figuring out when he needs my help and knowing when to let him be. Lately, Norrin’s motto has been “I can do it, all by myself.” He wants to brush his teeth and pour his juice and wash his hair all by himself, pushing my hand away when I try to help. Some days, we walk down the street and he doesn’t even want to hold my hand. And just last night, he took his first selfie! I love these little signs of independence. It’s a good thing. We want Norrin to be as independent as possible.

But independence can be messy.

Norrin doesn’t do the best job at brushing his teeth. When he pours juice, he almost always pours so much, it spills over the top. When Norrin washes his own hair he doesn’t know to rinse all the soap out. And when we’re walking, Norrin has difficulty navigating busy sidewalks. He doesn’t know to look both ways to cross the street.

Norrin craves independence but he still needs my help and my hand. And instead of doing for him, I am learning to guide him. I let Norrin squeeze toothpaste on his brush and let him brush his teeth. When he says he’s all done, I tell him it’s my turn and I brush his teeth again. When he wants something to drink, I stand nearby and let Norrin pour his own juice but I tell him when to stop. And if he spills juice, I make him clean it up.

I’m not going to lie. It’s easier, neater and faster to do for Norrin rather than letting him do things on his own. But if isn’t taught to do these little things for himself, how can he do the bigger things? The little things are the baby steps to an independent life.

Is your child showing signs of independence? How are you letting them go?

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What Is Autism?
What Is Autism?
What Is Autism?

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Should An Olympic Medalist Play Up His Brother’s Disabilities?

Tuesday, February 11th, 2014

Yesterday, I watched Canadian freestyle skier Alex Bilodeau, 26, win the gold at Sochi. The camera panned to his brother, Frederic, wildly cheering him on, joy and pride beaming out of him. Soon, Alex had pulled Frederic over the security barrier and they hugged. Alex dedicated his gold medal to his big brother.

Frederic has cerebral palsy. It’s legendary by now that he has inspired his brother throughout his career, most famously when Alex won gold in Vancouver. As Alex told reporters, “Whatever I do in my life, my brother is my real inspiration. Just like you or I, he has dreams and most of them are not realizable to him…. Every day I feel very lucky to be a normal person that has the chance to go after his dreams. He does not have that chance. And for respect to him, I need to go after that. With his motivation he would be four-time Olympic champion…. He lives his dreams through me.”

I cried when I watched the brothers hug. And then, I cringed a little when Alex spoke. As much genuine brotherly love as there was, what he said emphasized the “dis” part of his brother’s disability. This is the opposite of what I wish for my son, Max, who has cerebral palsy: I want the world to see his abilities.

When we are around other kids and they ask why Max doesn’t speak like they do, I’ll explain that he does communicate, just in his own way. If his iPad and speech app are handy, Max can show them how he uses it to voice his thoughts. When other kids in the neighborhood have asked why Max can’t skateboard, I’ll say his muscles aren’t yet up to it—but then I’ll point out that he rides his bike really fast. Sometimes, they’ve had races.

People are so used to looking at kids like Max and feeling bad for them. I don’t want the pity; that does Max no good. In fact, it further impairs him. I feel it’s my job, as Max’s mom (and senior publicist), to show the world what he can do.

In a video NBC aired, Alex tears up as he says that if his brother weren’t “handicapped,” he probably would be an Olympic champion—the two used to ski together as kids. Their mother speaks of Frederic’s joy for life. And yet, it is so clear Frederic has ability. He plays chess with his brother. He’s selling his art to benefit the Quebec Cerebral Palsy association.

This mourning of a brother who will never win Olympic gold gets to me. Heck, how many bazillions of people who don’t have disability lack that kind of athletic prowess? How many people are ever Olympic champions? Only a very, very select few.

The entire world has warmed to a story about two brothers, one whose amazing skiing is powered by a brother who will never achieve that. I love that Alex and Frederic have the relationship they do. But I wish this were another story: About two brothers who each have their own special abilities.

From my other blog:

The paradox of disability inspiration and may I admire you, please?

Those special need parent OMG moments

Jobs for people with disabilities, and a flash of hope

 

Images: Screen grab, 2014OlympicsSochi video; screen grab, NBC Olympics video

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Hooray For Cheerleaders With Special Needs

Thursday, February 6th, 2014

There’s a trend out there worth cheering for: more teens with special needs are becoming cheerleaders. I’ve been reading articles about girls with special needs joining squads, as Rachel Massingale above did at Centennial High School in Boise, Idaho, this year.

Cheerleader Megan Squire, of Verrado High School in Buckeye, Arizona (above), made headlines last year after starring in a video for a Katy Perry music contest. In November, Katy took her to the American Music Awards.

The Sparkle Effect is a nonprofit that encourages teens to include students with special needs—including Down syndrome, autism, and cerebral palsy—in high-school cheerleading programs. To date, there are 122 Sparkle Effect inclusive dance and cheer teams around the country. Unfortunately, schools aren’t always so open-minded. Last fall, the parents of high school freshman Brittany Davila, who lives in Deer Park, Texas and has Down syndrome (that’s her in the center, above), had to put in a special request so she could do her cheer thing; officials wanted to keep her in the stands, citing safety concerns.

Inclusive cheerleading squads are awesome, but I also love the ones out there comprised entirely of people with disabilities. There are the Shining Diamonds (above), a cheerleading team in Helena, Alabama made up of people ages 4 to 31 with special needs who travel to competitions throughout the Southeast (here’s their Go Fund Me page). And the Dakota Spirit Sparklers, an adaptive cheerleading team in Sioux Falls, South Dakota.

Either way, it’s A Good Thing for the world to see that having special needs doesn’t make you any less capable of expressing enthusiasm and getting into the spirit of a game.

From my other blog:

Tracking devices for children with autism and other special needs 

Jobs for people with disabilities, and a flash of hope

Birthday love for my other special child

 

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Baby Care Basics: What is Down Syndrome?
Baby Care Basics: What is Down Syndrome?
Baby Care Basics: What is Down Syndrome?

 

Images: Rachel Massingale/screen-grab, KTBV video; Brittany Davila/screen-grab, KHOU video; Shining Diamonds, Go Fund Me

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What A Special Needs Individual Is Worth…According To One CEO

Wednesday, February 5th, 2014

This is a post in the weekly Autism Hopes series by Lisa Quinones-Fontanez, a mom who blogs  over at AutismWonderland.

As an autism mom, I have just as many dreams for my son, Norrin, as any other parent raising a ‘typical” kid. One of my dreams for Norrin is that he grow up and be able to care for himself. I want him to have the opportunity to find work that he can take pride in. I am raising Norrin to be a respectful and responsible young man who will become a valued member of society. And I want Norrin to be recognized for his potential and worth.

However, wealthy CEO, Peter Schiff, believes that individuals who are “mentally retarded” are worth $2 an hour. Schiff’s comment is not only arrogant but ignorant. And it perpetuates the misconception that individuals with special needs are less than and unworthy.

Those of us who raise, love and know individuals with special needs, know how wrong Schiff is. It is a privilege to recognize a person’s true value. My friend, Jo Ashline, pretty much summed it up in this simple tweet:

I have a 27-year old sister with an intellectual disability. While there are jobs that she cannot do, there are many she can. For the last few years, she’s had a part time job as a greeter at Ikea. She’s able to take the train to and from home independently and she feels good about the money she earns. I am grateful that she works somewhere that values her as a person. That’s what I want for Norrin and every other kid with special needs.

Just because someone has a “disability” doesn’t mean they lack complete ability  to perform a task. Brad Fremmerlid is an amazing example of what can be accomplished when an individuals special talent is put to good use.

As Norrin’s mom, I believe Norrin is priceless. But on the day he is able to work, I want him to be treated equally and paid accordingly. Because regardless of autism, if he’s able to perform a job well – he should be paid fairly. It’s his human right.

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