Archive for the ‘ Special Needs Parenting ’ Category

What Kids Want To Be When They Grow Up: A Fascinating Poll

Tuesday, September 30th, 2014

The number-one job kids would like to have they grow up: superhero. That’s per a new poll of 3910 adults who are parents to children under age 10. Other career aspirations that top kids’ lists (in descending order): celebrity, doctor, President of the United States, teacher, prince/princess, astronaut, chef, police officer and Santa. (Apologies, Santa.)

The majority of parents, 65 percent, said they would like their children to someday follow in their career footsteps. Parents noted that the top things they believe are influencing their kids’ ambitions are TV shows and movies.

Both my kids think they know what they want to be when they grow up. Actually, with my son, it’s more like an obsession. We are not sure how or why Max decided on a career as a firefighter, but he talks about it all the time—and wears a plastic Fire Chief hat as often as he can (school and bathtime excluded). Max may have disabilities, but who am I to discourage him? Perhaps, someday, there will be a position for him in a fire department. For now, he is content to visit our local fire station every weekend. This past weekend, we took him to the FASNY Museum of Firefighting in Hudson, New York, and it was like he had reached nirvana, so blissful was he.

If I had answered that poll, conducted by Coupon Codes Pro, I would have said that parents are most likely shape their children’s career aspirations. My daughter wants to be a writer and editor when she grows up, just like Mommy. She’s started her own blog, and posts when she feels like it. I have to admit, I love it. I saw it coming: Back when she was little, one of her favorite games was for me to write out sentences that had spelling errors, and then she’d fix them with a pencil.

Whatever my kids do when they grow up is going to be fine with me, because it’s not something I can control. I do not know what the future holds for Max, both in terms of his development and the kind of work options that will exist for people with disabilities years from now. I do not know what my children’s interests will be when the time comes for them to choose jobs. Right now, I’m glad they’re taking an interest in work. Whatever career they ultimately choose, I just want them to be happy. 

From my other blog:

Special needs families: Not so different from other families

Those moments when you feel the weight of special needs parenting

What it’s like to live with a hidden disability

Add a Comment

Toilet Training A Child With Special Needs: Parents’ Top Tricks

Tuesday, September 16th, 2014

I recently found out about Touchless Toilet Technology from Kohler—a way to flush just by holding a hand over the tank lid, where a sensor has been placed. It’s really cool, and it seems like it would have been an excellent potty tool when I was training Max. Back then, both of us needed all the motivation and temptation that we could get. Max was day trained at school for a long time before he finally became so at home, at age 9. One key thing I learned: Parents have to be just as ready as the kids are. Potty-training a kid with special needs requires dedication, and if you’re not diligent about whatever tactic you try, your child won’t get into the groove.

I asked special needs parents on social media for their best tricks and tactics for potty training a child with special needs. May the flush be with you!

ENCOURAGEMENT

“What finally worked was using star stickers on a chart. Nicholas got to put one on every time he went. It seemed to really work for him that way (even though I still had to more or less force him onto the seat each time).”—Sarah L.

“The Clean Pants Check. We did the usual sitting on the potty 30 minutes after eating or drinking, but instead of checking every 30 minutes thereafter to see if he was ‘dirty,’ we checked to see if he was CLEAN, then rewarded him. He is autistic and was not potty-trained at 4.5 years old. It only took one month with this method.”—Peggy M.

“Lukas is autistic. We did lots of modeling and letting him see us go. We are not a shy family. No pressure. A couple of months after turning four, he just went in and did it. That was it.”—Rebecca D.

“I put a Pull-Up on over a pair of panties. She felt the wetness, which ultimately motivated her not to go in her pants, and I had the leak protection of a Pull-Up.”—Crystal S.

“My son was very stubborn. Making him responsible helped. He had to get the Pull-Ups from the drawer and throw them away. I bought toddler wipes so he could more easily clean himself. Eventually I think it just came down to…it was time. He was 9.”—Angela S.

“For nighttime training, two words: alarm underwear!“—Melissa M.

“For my grandson, I picked a weekend, I talked about it with him and told him when he got home from school on Friday, he would be able to wear Big Boy underwear that he picked out the week prior (Buzz Lightyear)…. The two days of potty training gave him the ability to understand what holding it meant, and he had had to tell somebody. He has had a few accidents, but we never went back to diapers. He will be 9 tomorrow and completely potty trained. They said he would never accomplish being potty trained…. HA!”—Barbara D.

EDUCATION

“Avakid’s app See Me Go Potty. Seriously, worked like a charm.”—Faye C.

“We used potty-training DVDs and huge celebrations: woo-hoos, dancing, making a complete jack@$$ of ourselves.”—Devon B.

“Learning to point to icon on his speech app led to being willing to sign/verbalize needing to go. Didn’t happen until age 12 after trying many other ways.”—Peggy R.

“Repetition. We just did it over and over and over and over (you get it) until it stuck. Oh, and Reece’s Pieces.”—Patty H.

ENTERTAINMENT

“I bought those little tablets that you throw in the water of the toilet, they come in all different colors. I guess it’s kind of like target practice: Once they pee on the little tablet it starts to dissolve nd turn the toilet water whatever color the tablet is.”—Stacy S.

A giraffe puppet trained mine! They wouldn’t do it for me, but they’d do it for the puppet.”—Kristen R.

“For my daughter, I painted her toenails while she sat on the potty. She was fascinated by watching me do it and it would keep her still and help her stay put for a few minutes.”—Rosie R.

“There is this funny song about poop in Brazil, with a video clip and everything. I used to sing it for my son, making voices and faces, while he tried to do number 2. It worked really well. This is the link. Yeah, it’s a poop singing!”—Andrea B.

REWARDS/BRIBERY!

“He wanted a doctor kit so I put a brand new one on top of the entertainment center out of reach and said he had to use the potty and get out of diapers to have it. Every time he asked for it I just said, ‘You know what you need to do.’ I didn’t push him to use the potty. One day he decided he wanted it enough and did it. He was almost 5.”—Jennifer R.

“Had a treat box in the bathroom filled with cheap toys my son loves from Walmart and Big Lots! When he did his thing, he would get to choose one.”—Kay T.

“I used Daniel’s favorite, M&M’s, plus I kept a potty chair in the family room for emergencies!”—April G.

“A Lalaloopsy mini doll as a reward for poop on the potty. I bought an eight-pack for $44. Best money I ever spent. After two years of potty training for poop, this finally seemed to work at the age of 6.”—Christie C.

“I told my son with Sensory Processing Disorder that we couldn’t go to Disney World the following week, because Mickey didn’t let kids his age who couldn’t use the potty into Disney World. I only told him this because his OT and I agreed he was not doing it purely out of stubbornness, at that point. I wish I had done it sooner because 48 hours later, he was completely day-trained.”—KLW

CUE: LET IT GO

“Nothing worked. And we tried EVERYTHING! He just had to be ready. We finally just gave up, told him he could stop trying and wear Pull-Ups as long as he needed to. He self-trained the next day. He was 4 and we’d been trying for two years. I think just stepping back and taking the pressure off, letting him set the agenda and be in control of the process was key for him. He has Asperger’s.”—Angela C.

“Wine. #formom.”—Katrina M.

From my other blog:

Kamikaze potty training

A happy ending to the toilet-training saga 

Potty training boot camp
Image of child looking at toilet via Shutterstock 

Add a Comment

The Awful Prank On An Autistic Teen—And How We Can Prevent This

Monday, September 8th, 2014

The web has been buzzing over a vile incident involving a 15-year-old with autism in Bay Village, Ohio. A group of teens asked him over to their house, purportedly to participate in the ALS Ice Bucket Challenge geared toward raising money for the disease. Instead, as the teen stood in a driveway in his underwear, a bucket full of urine, fecal and spit was dumped onto him from the roof. The boy’s mother, Diane, discovered a video of what happened on her son’s cell phone. Police say that the group of teens who committed it could face delinquency chargers. The parents released the video, hoping to raise awareness about bullying.

People have been justifiably horrified, with many speaking out against bullying. Last Friday evening, his community held a rally with people holding signs such as “No room for hate.” Comedian Drew Carey has offered $10,000 in reward money to help find out who was behind the incident. All over social media, people have denounced what happened.

As horrific as this assault was for this teen and his family, as extra-upsetting as it is to those of us who have kids with special needs, the outpouring of support has been heartening. Still, it’s sad that it takes a shocking incident like this for people to spread the word that people with special needs deserve respect. If that were to occur regularly, though, events like this could be avoided. Not entirely, of course, because there will always be rotten apples. But if kids were raised to treat peers with special needs as their equals, children with autism, Down syndrome, cerebral palsy and other special needs would be less subject to derision, exclusion and bullying.

This isn’t just about making sure kids with special needs are included in school’s anti-bullying messages; this is about parents talking with their kids about children and adults with special needs from a young age, so children grow up with that equality mindset.

Here’s a challenge for parents to take. It involves no icy water, just a willingness to help kids understand the diversity of people that exist in this world, and to talk about it with them.

• Explain to your child how everyone has differences, and that some kids and adults have ones that are more visible—and that different is OK.

• Point out even though a child may act, speak, walk or talk in a non-typical way,  in many ways they are like other children: ones who like to play, laugh, eat ice-cream, read bedtime stories…you know. That they feel happy and sad, just like they do. That they are kids.

• Help make kids aware of the ability in disability, and that everyone has their own kind of talents. If you do not have any kids or adults with special needs in your circle, google images of Special Olympics athletes—a good conversation starter. Or poke around blogs by parents of kids with special needs to help your child get a sense of what our children can do.

• Discourage the use of the words “retard” and “retarded,” which perpetuate negative stereotypes of people with disability. (If you don’t get what’s so wrong with them, watch this video.)

• Make this an ongoing conversation, just as parents regularly talk with kids throughout childhood about race, ethics and other all-important topics. Encourage them to ask you questions.

• Bridge the gap that can exist at parks, playgrounds, parties, when kids may be hesitant to approach a child with special needs. Encourage interaction. Tell them to just say “Hi,” as they would with any child.

I hope you’ll take this challenge. It’s not just for the sake of kids like my son—it’s for the benefit of your child, too. Teach your child to welcome and respect people with special needs and you will raise a better human being.

From my other blog:

30 ways to respect kids and adults with disabilities

If only everyone treated people with disability like this Starbucks barista did

Teaching a child with special needs to be his own champion

 

Image of ice bucket via Shutterstock 

Add a Comment

Daycare For Kids With Special Needs: Yes, Please

Tuesday, August 26th, 2014

Among the many things I wished for when Max was little: a daycare that specialized in kids with special needs. We had a regular sitter, but when she was on vacation or called in sick, leaving Max at a regular daycare was stressful. Sometimes, my husband and I ended up taking off days from work.

I was so thrilled to read about A Place For Grace in Saginaw, Michigan, a daycare center for kids with special needs that opens September 2. Its founder: a mother of a child with special needs. As Jenny Dumont recalls of her struggles finding daycare for her daughter Emma Grace, now 9, who has intellectual disability, “She was having meltdowns four times in one week and I got called in to pick her up and when I got in the caregiver was doing the best she knew how. I got really frustrated and thought, Why isn’t there a place for children like Emma?”

Jenny Dumont and daughter Emma Grace

A Place For Grace has teachers trained in special education, along with a sensory room and toys  for kids with special needs. It will ofter preschool for children ages 3, 4 and 5 (who missed the school cut-off) and aftercare for kids ages 5 to 16. The goal is to offer full-day childcare for school breaks and special days by Summer 2015, including therapies in accordance with children’s IEPs.

If you Google “special needs daycare center” in your area or state, some might crop up—key word being “might.”  This country is sadly lacking in daycare options for children with special needs. It’s astounding, though not surprising, that this one was started by a parent of a kid with special needs. Parents like us often have more than our hands full and yet, we best know just how needed services like this are.

Also see Parent.com’s Day Care and Babies With Special Needs

 

From my other blog:

On letting your child with special needs do things for himself 

My kid with special needs understands you so don’t ask me, ask him

That sad you feel when you think about your pregnancy

 

Image source: Screen grab of center, WNEM video; Emma Grace and Jenny via GoFundMe

 

Add a Comment

A New Bike Built For Kids With Special Needs

Wednesday, June 25th, 2014

This is a post in the weekly Autism Hopes series by Lisa Quinones-Fontanez, a mom who blogs  over at Atypical Familia.

Jyrobike is the World’s First Auto Balance Bicycle that features a patented Control Hub in the front wheel that uses gyroscopic technology to keep riders upright, even when they tip or wobble.

Riding a bike has not come easily for my son, Norrin. After he was diagnosed with autism, we learned that he didn’t have the strength or the coordination to pedal. For years we’ve worked with therapists trying to build up Norrin’s muscle strength and teaching him how to balance. We’ve bought tricycles, big wheels and even scooters – hoping Norrin would be able to master one. Eventually Norrin learned to pedal but he still lacked the focus, tired easily and had difficulty maintaining balance.

Last spring, we bought Norrin his first real bike. And while he showed an interest in riding it, he still needed a lot of work. Even with the training wheels he still had trouble with balance and had difficulty turning. Now that bike is too small and we’re wondering whether or not we should buy another. Norrin will still need training wheels and it may be years before he learns to balance independently.

That’s when I heard about the kickstarter campaign for Jyrobike I knew I had to share it! It’s the ideal solution for kids like mine. “Jyrobike is built on the core principle that bikes become inherently stable at higher speeds because the faster the wheels spin, the more balanced it becomes.” While originally designed for 3 – 8 year olds, “one of [the company's] stretch goal rewards will be very popular with parents of older children.” There are also plans to launch an adult product.

Jyrobike will change the lives of so many families with special needs, especially kids with autism. It allows children to learn to ride a bicycle with confidence and a sense of security. It will provide the physical activity they need to maintain their health and it’s a social activity that can be shared with family and friends. Bike riding is a skill that can lead to a more independent life.

To learn more about Jyrobike visit http://www.jyrobike.com.

Catch up with last week’s post: How Not To Handle a Public Meltdown

And from my other blog:

 

Add a Comment