Archive for the ‘ Disability ’ Category

The Bill That Could Better Our Children’s Lives

Tuesday, July 29th, 2014

If you are an adult with disabilities, you are not allowed to have more than $2000 or you surrender your government benefits. I’ve known this fact for years, after I went to a rather depressing seminar about the future of benefits in our state. But there’s legislation in the works that would allow people with disabilities (and their families) to save up to $100,000 to pay for health care, education, transportation and other expenses, without losing Medicaid coverage. The act is called Achieving a Better Life Experience (ABLE), and a U.S. Senate hearing last week kicked off the bill’s progression through Congress.

Reports say that the bill is likely to pass in September, with hundreds of sponsors from both houses of Congress. Sara Wolff, 31, who has Down syndrome, testified before the Senate panel, noting how the ABLE Act could improve her life; per current laws, she is only allowed to earn up to $700 a month.

As she’s said, “Just because I have Down syndrome, that shouldn’t hold me back from achieving my full potential in life. I can work a full-time job, be a productive member of society, and pay taxes—but because of these outdated laws placed on individuals with disabilities, we hold people like me back in life.”

You can add your signature to the online petition to pass the ABLE Act.

Life With Down Syndrome
Life With Down Syndrome
Life With Down Syndrome

From my other blog:

The shocking realities of raising children with disabilities, and why society needs to know

What I think when I watch my child with special needs sleep

Let It Go, like you’ve never heard it sung

Image of piggybank via Shutterstock

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I Doubt Justin Bieber Faked Disability–But What Happened Still Hurt My Kid

Friday, July 25th, 2014

Gossip and entertainment sites were buzzing this week about fan sightings of Justin Bieber at Disneyland last Sunday, in a wheelchair, cutting lines. Fans shared social media photos, including the above, of the star. There was speculation that Justin did this to cut lines. There were other photos posted of him the next day, standing perfectly fine.

Let’s start with this: Celebrities do not need to “fake” disability because they can easily get preferential treatment at theme parks, and pretty much anywhere they go. Justin’s done a bunch of dubious stuff in recent years, but it just seems ludicrous to think he’d need to do this. TMZ reported that he was nursing a knee injury from basketball and only sat in the chair for a short time. They also noted that Bieber gets escorted in and out of the park, to avoid attracting a crowd.

Not that countless people haven’t tried over the years to pretend to be disabled. My husband knew someone, as a teen, who’d rent a wheelchair to cut lines at theme parks. Last May, the news broke that wealthy parents were hiring people with disabilities so they could bypass lines.

That abuse is one key reason Disney recently changed its policies for accommodating people with disabilities to a system that’s similar to Disney’s Fastpass one, in which a park attendant gives you a return time for a ride. So the second, and more key reason, this whole story can’t be true is that people in wheelchairs do not automatically get access to rides, or any additional leeway. Only wheelchair users who have behavioral or sensory issues or other disabilities might qualify for the Disability Access Service Card. But that wasn’t always the word being spread online. As The Wire said, “Everybody knows that Disneyland allows its disabled guests to cut the lines at any rides that can accommodate them, so, you know, congrats to Justin Bieber for FINALLY getting an advantage in life.”

Right. As if having a disability is ever an advantage. If you have a kid with special needs then you know what a constant uphill battle life can be.

The media is ready to jump on Justin Bieber for any move he makes, but it seems like he didn’t deserve this—and neither did people with disability. Bad reporting like this hurts kids like my son, because it spreads the misconception that people with disability “get away” with cutting lines. Some of them, like Max, dorequire accommodations at theme parks. He has cerebral palsy and can’t stand for long periods of times. He gets scared of crowds. I know of other kids with special needs whose bodies can’t properly regulate temperature, and so they can’t wait for long periods in heat.

Make no mistake: Accommodating our children isn’t special treatment—it’s leveling the playing field so they can enjoy parks in the same ways that other kids do.

From my other blog:

What I think when I watch my child sleep

8 ways to include kids with special needs in programs, events, classes, camps, wherever

Good summer fun: a reading under the stars party

 

Image: Twitter/SwaggyJB3914

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Mannequins With Disabilities Show The Beauty of Diversity

Thursday, July 17th, 2014

If you walked by the JCPenney in New York City, you might notice something a little different in the store window display. Something amazingly different. The five mannequins reflect physical diversity. Modeled after five real people, they include a woman in a wheelchair, a man with dwarfism and a double-leg amputee, along with a plus-size woman and a 6-foot-one-inch man. The mannequins are part of the store’s “When it fits you feel it” campaign, and were specially made for the TODAY show’s Love Your Selfie series, as Today.com reports.

As the parent of a child with disability, I love this. Traditionally, initiatives in support of body image (especially from the fashion industry) have to do with plus-size women. It makes total, wonderful, awesome sense to celebrate the physiques of people with disabilities, too. The more others can see people with disabilities in mainstream settings, the more they will come to think of them as being mainstream. Too often, that’s still not the case.

Model inclusion is also happening more frequently, slowly but surely, in advertising. Nordstrom’s July catalog, reports ABC News, includes a man with a prosthetic leg showing off running shoes and model Jillian Mercado in a wheelchair modeling boots (she made headlines this spring for appearing in a Diesel ad campaign).

The mannequins are on display through August. I think they should go on tour!

From my other blog:

8 ways to include kids with special needs in programs, events, classes, camps, wherever!

Let It Go, like you’ve never heard it sung 

On wondering what your child with special needs will do when he grows up

 

Images: Screen grab, Today video; Nordstrom catalog

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Dancing With The Wheelchair Stars

Thursday, July 10th, 2014

A global wheelchair dancing competition recently finished in Beijing; the winners will head to the Asia Paralympic Games, which will be held in Korea in the October. It’ll be the first time wheelchair dance is a competition category in those games.

There were 116 contestants from eight countries at the competition including an 85-year-old woman, as reported on CCTV. Wheelchair dancing is a big-deal sport these days. If you have a child who uses a wheelchair, check into local classes, like the ones offered around the country by American DanceWheels instructors and The Dancing Wheels Company & School in Cleveland. Check out the video:

Competing is tough work; the dancers get blisters on their hands from gripping the chair’s wheels. The moves also take a whole lot of upper-body strength. But watching the video of the dancers in action in Beijing, all you see is their grace, technique and energy, along with the joy they take in their movement—exactly what any dancer aims to achieve.

For me, this is about great dancing, period. For some dancers, it’s much more. As one said, “The wheels are like my wings that help me realize my dreams and fly me to a bigger stage.”

From my other blog:

5 fun summer activities for kids with special needs

The connections you make with other parents in Special Needs World

You never stop appreciating the milestones, big or small

 

Image: Screen-grab, CCTV News

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A New Bike Built For Kids With Special Needs

Wednesday, June 25th, 2014

This is a post in the weekly Autism Hopes series by Lisa Quinones-Fontanez, a mom who blogs  over at Atypical Familia.

Jyrobike is the World’s First Auto Balance Bicycle that features a patented Control Hub in the front wheel that uses gyroscopic technology to keep riders upright, even when they tip or wobble.

Riding a bike has not come easily for my son, Norrin. After he was diagnosed with autism, we learned that he didn’t have the strength or the coordination to pedal. For years we’ve worked with therapists trying to build up Norrin’s muscle strength and teaching him how to balance. We’ve bought tricycles, big wheels and even scooters – hoping Norrin would be able to master one. Eventually Norrin learned to pedal but he still lacked the focus, tired easily and had difficulty maintaining balance.

Last spring, we bought Norrin his first real bike. And while he showed an interest in riding it, he still needed a lot of work. Even with the training wheels he still had trouble with balance and had difficulty turning. Now that bike is too small and we’re wondering whether or not we should buy another. Norrin will still need training wheels and it may be years before he learns to balance independently.

That’s when I heard about the kickstarter campaign for Jyrobike I knew I had to share it! It’s the ideal solution for kids like mine. “Jyrobike is built on the core principle that bikes become inherently stable at higher speeds because the faster the wheels spin, the more balanced it becomes.” While originally designed for 3 – 8 year olds, “one of [the company's] stretch goal rewards will be very popular with parents of older children.” There are also plans to launch an adult product.

Jyrobike will change the lives of so many families with special needs, especially kids with autism. It allows children to learn to ride a bicycle with confidence and a sense of security. It will provide the physical activity they need to maintain their health and it’s a social activity that can be shared with family and friends. Bike riding is a skill that can lead to a more independent life.

To learn more about Jyrobike visit http://www.jyrobike.com.

Catch up with last week’s post: How Not To Handle a Public Meltdown

And from my other blog:

 

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