The Best Special Needs Parenting Advice I Ever Got

Special needs parenting advice: What’s the best you ever got? That’s what I asked readers on Parents’ Facebook page, and a lot of great responses poured in. Amazingly, not one involved vodka! Take a look, then feel free to add your own advice in a comment.

• “Don’t compare yourself to other people. You are the best parent for your child. That’s why they picked you.”—Megan

• “If you don’t fight for your child’s rights, no one else will!”—Jamila

• “I have a little girl with Down syndrome. My mother told me when she was born, ‘Science has shown you what is in Maria’s Petri dish. Now you look to Maria to show you who she is as a person. Let her lead the way.’  Best advice ever. There are too many stereotypes out there to weigh on and hinder children who have a ‘diagnosis.’ I have found that most of the time, these stereotypes simply do not apply.”

• “It’s not really ‘special needs’ as much as it is a special gift. Take time to see and love your special gift.”—Anna

• “Mother really does know best… If you think something is wrong and they are telling you everything is fine, trust your mother’s intuition!”—Cindy

• “I grew up with a brother with autism, and now my daughter who is two has autism. My mother used to always tell us that no matter who you see, everyobody is the same, but the qualities that we have separate us from others and makes us each special in our own way. Thank you, mum, for that life lesson.”—Amanda

• “Celebrate every achievement, be it big or small!”—Rachele

• “Never hold her back. I raise and treat her just like her brother. She may have a rare condition, but the rare condition doesn’t have her or define who she is.”—Alison

• “We are a non-profit started by my son who is a one-handed baseball pitcher for Greenville College. When he was an infant we frantically took him from hand doctor to hand doctor to try to figure out if anything could be done to help him gain a grip and why he was born missing a hand. The last and final doctor was at the Kleinert Hand Clinic in Louisville, KY. We came to terms with the fact that he would be one-handed forever. My husband rapid-fired, ‘How will I teach him to…?’ questions. Dr. Schecker replied, ‘You won’t have to teach him to do anything. He will teach you. He will amaze you. Don’t call attention to his perceived limitations and neither will he.’ SPOT ON!”—NubAbility Athletics

• “Don’t sweat the small stuff!”—Alyssa

• “They will be as great as your expectations. Adapt for them but don’t treat them any different than your other children. Also, don’t forget your other children and your relationship with your spouse.”—Adara

• “Oh, and be consistent! If you tell them no, then stick with it no matter how big the fit is. Children are very smart!”—Adara

• “My son has Down syndrome. I think the best advice was, have expectations, be realistic, and celebrate the smallest things because they are HUGE accomplishments for him. And to always remember, he is unique, and he will get there, on his own time!”—Amanda

• You are always going to have to be your child’s biggest advocate and teach your child that everyone is different, so we all have to be proud of those differences because that is what makes everyone special!”—Carrie

• “Every child is a blessing. Every child is different.”—Nicol

Go on, share your own advice!

 

From my other blog:

My child with special needs is not a burden to society

A Bill of Rights For Parents Of Kids With Special Needs 

Top 20 reasons moms of kids with special needs ROCK

 

Image of mom and child having fun via Shutterstock

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  1. by Helena

    On June 12, 2012 at 7:37 pm

    The best special needs parenting advice we got was before we knew we were special needs parents: Get them evaluated. The kids will think they’re just playing, and if they qualify, they can get services. I’m so glad we didn’t wait for them to “grow out of it”!

  2. by Jessica

    On June 16, 2012 at 12:00 pm

    The best special needs parenting advice I ever got was from a book. “Motherhood is about raising and celebrating the child you have, not the child you thought you’d have. It’s about understanding he’s exactly the person he’s supposed to be. And, if you’re lucky, he might be the teacher who turns you into the person you’re supposed to be.” ~The Water Giver

  3. by Dianne

    On June 20, 2012 at 6:10 pm

    Stop worrying and enjoy him!