Boy Ordered to Transfer Middle Schools for Having Cystic Fibrosis Gene

An 11-year-old California boy has been told he needs to transfer to a different public middle school because he carries the gene for–but does not have–the genetic disease cystic fibrosis.  From MSNBC.com:

Colman Chadam, was told last week that he’d have to transfer from Jordan Middle School in Palo Alto, Calif., to a school three miles away because he posed a risk to another student at school who does have the disease, according to TODAY.

“I was sad but at the same time I was mad because I understood that I hadn’t done anything wrong,” Colman told TODAY. He added: “It feels like I’m being bullied in a way that is not right.”

An inherited condition, cystic fibrosis causes the body to create a thick mucus that clogs the lungs and can lead to life-threatening lung infections. About 30,000 American adults and children have the disease and patients have an average life expectancy in the late 30s.

While it is not contagious, doctors say people with cystic fibrosis can pose a danger to each other through bacterial cross-contamination if they are in close contact.

“In general, we would prefer that there not be more than one cystic fibrosis patient in a school,” Dr. Thomas Keens, the head of the cystic fibrosis center at Children’s Hospital Los Angeles, told TODAY.

The district’s assistant superintendent, Charles Young, told NBC News that officials relied on medical authorities who said “a literal physical distance must be maintained” between patients and that the “zero risk option” was to transfer Colman.

Colman’s parents are homeschooling him while they await a decision on the school situation.  They emphasized to the media and to school officials that their son has never had a clinical diagnosis of cystic fibrosis.

Image: School bus, via Shutterstock

 

Add a Comment
Back To Parents News Now
  1. by David wagner

    On October 20, 2012 at 2:16 pm

    I would like to talk with this family . I am an adult with cystic fibrosis and other major medical issues I can help there family school issues that they are having I would also like to call a news conference re cystic fibrosis in public schools there is to much going on to patients and non cystic fibrosis patients in public schools if you want to hear more about Cystic fibrosis in public schools please contact me as soon as possible 612-282-1211 many schools have no idea what cf patients go through as well as what needs to be done for cystic fibrosis gene carriers i want get the record correct I am very upset how these people not understand patients with cystic fibrosis as well as cystic fibrosis gene carriers lets make cf patients have a normal day at school and leave the drama out of the public schools I think that when this goes to court there is going to be big trouble for this school they are going to allow this student to return back to school i think the parents only told the school so that they were aware not to be used as a way to remove the child out of the school this student is also a very good student said the teacher so lets again show schools what needs to be done

  2. by Youjizz

    On November 6, 2012 at 9:45 pm

    Thanks for some other informative website. The place else may just I am getting that type of info written in such an ideal approach? I have a undertaking that I’m simply now running on, and I’ve been at the look out for such info.

  3. by LADYOFTHEHOUSECA

    On January 1, 2013 at 11:37 am

    I like this web blog very much, Its a rattling nice post to read and get info. “Never complain and never explain.” by Benjamin Disraeli.

  4. by Vince Polacco

    On February 6, 2013 at 4:50 pm

    hello there and thank you for your info – I have definitely picked up something new from right here. I did however expertise a few technical points using this site, since I experienced to reload the website many times previous to I could get it to load correctly. I had been wondering if your hosting is OK? Not that I’m complaining, but slow loading instances times will sometimes affect your placement in google and could damage your quality score if advertising and marketing with Adwords. Anyway I am adding this RSS to my email and could look out for a lot more of your respective exciting content. Make sure you update this again soon..