Sending Love to Emily Rapp Author of ‘The Still Point of the Turning World;’ Her Sweet Son Ronan Passed Away Today

A dear, smart and inspiring author, Emily Rapp, lost her son Ronan today after a long struggle with Tay-Sachs disease. Emily’s forthcoming memoir, The Still Point of the Turning Worldis one of my very top picks for 2013. I will read it soon with tears in my eyes. Here is a little more about Emily’s story directly from her press materials:

“Ronan was not expected to live beyond the age of three; he would be permanently stalled at a developmental level of six months. Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting. They would have to learn to live with their child in the moment; to find happiness in the midst of sorrow; to parent without a future. The Still Point of the Turning World is the story of a mother’s journey through grief and beyond it.”

Peace be with you, Emily. Peace be with your family. Peace be with Ronan up above.
In lieu of gifts, the family requests that donations be made in Ronan’s name to National Tay-Sachs and Allied Diseases.
Add a Comment
Back To Mom Must Read
  1. by Erin

    On February 18, 2013 at 9:47 pm

    Thank you for sharing this sad news. I look forward to reading this amazing book.

  2. by Angie Cunningham

    On March 8, 2013 at 7:49 pm

    I saw Emily’s story on the “Today Show” earlier and I was just amazed and impressed with how she strived to make Ronan’s life so fulfilling in the short time he had here. She is a great role model in how we need to be present in life and enjoy every moment. Thank you Emily for sharing your story with us!

  3. [...] Author Of ‘Notes from a Dragon Mom’ On Her Son Ronan, Her Memoir And Grief March 11, 2013 By Mr Brooks Leave a Comment Three days after Emily Rapp’s son Ronan was diagnosed with a terminal illness, she started blogging about the experience. He was 9 months old and had Tay-Sachs disease, a fatal, degenerative condition. At first, she posted to tell friends and family. “I felt really raw. The writing gave me a shield. It was a way to feel connected to my people without being on the phone all the time,” she told me in an interview this week. Rapp’s audience grew beyond her immediate circles though. Many visitors came to her site after reading “Notes from a Dragon Mom,” The New York Times op-ed she wrote about parenting a sick child. They joined the community around Emily and Ronan, and stayed until the end. On Feb. 15, Ronan died, and we all grieved. [...]