Good Deed Friday: Fight SMA

I met Katy Therriault (our Power of Parents mom in the October issue) back in May and have thought about her and her family just about every day since. It’s hard to explain the impact she had when talking about her 3-year-old son, Billy. He has a genetic disease called Spinal Muscular Atrophy. It’s the number one genetic killer of kids under 2. You’ll know what I mean if you watch this incredible video they starred in to raise awareness. See the full version here.

To do more, you can sign this petition to help fund research for SMA and related diseases. It’s headed to the United States Senate and United States House of Representatives and is being promoted by four groups: Families of SMA, FightSMA, Muscular Dystrophy Association, and SMA Foundation.

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  1. by aimy

    On September 26, 2008 at 1:56 pm

    my heart broke when i heard the father of that beautiful boy say it was probably too much to hope for. no, it’s not. i hope they stay strong and fight. my heart goes out to this family and families like them.

  2. by Grace FULL

    On September 28, 2008 at 9:22 pm

    Hi – heartful thanks for blogging about SMA research. As an early intervention specialist, I have worked with children with SMA. These families are indeed strong & deserving of the best fight we can give them. Signing the petition is the very least we can do.