Good Deed Friday: Fight SMA
I met Katy Therriault (our Power of Parents mom in the October issue) back in May and have thought about her and her family just about every day since. It’s hard to explain the impact she had when talking about her 3-year-old son, Billy. He has a genetic disease called Spinal Muscular Atrophy. It’s the number one genetic killer of kids under 2. You’ll know what I mean if you watch this incredible video they starred in to raise awareness. See the full version here.
To do more, you can sign this petition to help fund research for SMA and related diseases. It’s headed to the United States Senate and United States House of Representatives and is being promoted by four groups: Families of SMA, FightSMA, Muscular Dystrophy Association, and SMA Foundation.Add a Comment