Best Resources for Parents of Babies with Special Needs

There are so many websites that parents of babies with special needs can visit for information and support, it's difficult to know where to begin. Here's a list of the most reliable resources.

pediatrician and baby Lara Robby

It's natural to have a lot of questions and concerns when you find out that your baby has special needs. Tap into the expertise of these respected organizations and websites. They can help you figure out how to best give your baby the care she needs to grow up happy and healthy.

1. Parent Advocacy Coalition for Education Rights

PACER partnered with the National Endowment for Financial Education (NEFE) to create Possibilities, an online financial guide and website designed to help parents navigate the financial challenges associated with caring for a child with special needs.

2. Parent to Parent USA
P2PUSA.org

This organization matches parents of children with special needs with trained volunteer support parents who provide emotional support, resources, and guidance.

3. My Child Without Limits
MyChildWithoutLimits.org

Although this site is maintained by United Cerebral Palsy, the information focuses on a variety of disorders that can cause developmental learning delays, including Down syndrome, epilepsy, and hearing and vision impairments. The online community offers an opportunity for families to connect and share words of encouragement and to provide solutions to everyday problems.

4. Easter Seals
EasterSeals.com

This nonprofit organization provides services that include early intervention therapies and child-care centers for families with children with special needs. Easter Seals also collaborated with the NEFE to create a free online financial planning guide called With Open Arms for parents caring for children with special needs.

5. Parenting Special Needs
ParentingSpecialNeeds.org

This free online magazine is designed specifically for parents of children with special needs.

6. Exceptional Parent
eParent.com

ep (Exceptional Parent) Magazine provides educational information for families of children with disabilities and special needs, as well as health-care professionals involved in the care and development of special needs children.

7. The Early Childhood Technical Assistance Center
ECTACenter.org

The ECTA Center's goal is to improve state early intervention services and early childhood special education service systems. Information provided on the site is aimed at helping families understand their rights under the Individuals with Disabilities Education Act (IDEA). The Center is funded by the U.S. Department of Education?s Office of Special Education Programs.

8. Individuals with Disabilities Education Act (IDEA)
Idea.Ed.Gov

This federal law requires states to provide early intervention services, such as physical, occupational, and speech-language therapies, for children with special needs, starting at birth and continuing throughout the school years.

9. Sibling Support Project
SiblingSupport.org

As the name implies, this organization provides support and hosts programs for children whose siblings have special needs.

10. National Association of Parents with Children in Special Education
NAPCSE.org

NAPCSE maintains online databases of information on special education and services for special-needs children. An online forum connects families with others in similar situations.

Life With Down Syndrome

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